Wednesday, October 14, 2015

There Will Be No End



  When the moment came, so many thoughts and emotions went through my head.  Guilt, failure, sadness, fear, relief and lots of love to name a few.  With all these emotions and so many choices to be made, all I could do was cry.

  The day came exactly 2 weeks after we received the devastating news and had made the decision to give our baby girl the best life possible for her remaining days inside my body. October 7, 2015 our precious angel arrived, Violet Erin Jo. 

  The weekend prior to her arrival I just knew something was wrong.  I was in so much pain that all I could do was sit and rest while trying to find comfort with a heating pad.  I thought many times I was going into labor but then the pain would cease.   Violet was still very active and I could feel her every movement.  On Monday morning I decided to go to work. I wanted some sort of normality back in my life and thought this would help. I had a good morning at work and came home on my lunch.  I still just didn’t feel right though so decided not to go back to work and instead stay home to rest.  That night when I went to bed there was no movement which was odd because she was super active in the evenings and in the mornings. There was still no movement the next morning and I just knew.  A million thoughts were going through my head. Do I tell Jeremy? Do I just wait and see if maybe I am wrong? My mind would trick me into believing that maybe I just felt her move. There were so many thoughts and emotions.  I had an appointment already scheduled for that afternoon so I knew there was no point in going in to the hospital immediately. Several minutes before we walked out the door for our appointment, I looked at Jeremy and asked “What are we going to do if there is no heart beat?”   I don’t know if he believed I was being serious but deep down I knew the time had come to ask myself this very question.

  We got to the doctor’s office and I told my doctor that I hadn’t felt movement and what I believed to be true at this point. Once again, I cried.   She got the Doppler out and we tried and tried to find a beat but my heart beat was the only sound.  We proceeded with an ultra sound to confirm and yes indeed our sweet baby girl had passed.  My heart sank and I thought to myself “I can’t believe she is gone”.  With so much relief that she was not suffering and so much sadness that the moment had come, we had to start making choices.  I want it to be known that we were truly blessed with the greatest doctor EVER.  If it hadn’t been for her these choices would have been so much harder.  We decided to head home to pack our bags and drive to Madison with our doctor.  Yes, our doctor is that amazing that she went to Madison with us and was there for us with the most unconditional support and love of any human being, let alone doctor, could provide.  I honestly couldn’t have made it through everything without her.  We are so lucky to have her in our lives and couldn’t have found a better person to name our sweet Violet after (Erin). 

  24 hours after arriving in Madison, our baby girl arrived.  It was a very long, brutal labor and delivery. My body just wasn’t ready to let go.   I thought that the emotional pain would numb the physical pain but I was completely wrong.  The emotional pain made the physical pain so much worse.   With the most AMAZING husband and doctor by my side the entire labor and delivery and with their physical and emotional support, I was somehow able to push through.  I will never forget how minutes before her arrival, with everyone staring at me, I had to take a short mental break.  I sat and cried.  At that point the only pain I felt was in my heart.  I never in my life thought it was possible to be this sad and to emotionally hurt this much. I wasn’t ready for it to be over and to let go but part of me felt a sigh of relief that certain aspects of the situation were coming to an end. I had given my baby the best life inside of me possible but now it was time to lay her to rest.  I took a deep breath and minutes later she was there.  The medical staff put our angel aside and focused on me and my physical well-being. I just wanted to be left alone.  Once things were under control with me my thoughts remained with our angel but I wasn’t sure if I was ready to see her, I was scared.  Erin (my doctor) went over and saw her first.  I asked her every question I thought of about our little girl. She answered them honestly and she brought her over for me to hold. Jeremy and I just stared at her, she was OUR baby.  In all the years of my life I will never forget the moment of looking at her tiny face, hands and feet.  She was our angel.

  For the days after the delivery, the physical pain was a constant reminder of the emotional pain.  I cried a lot.  I felt as if my life would never be normal again and all I wanted back was my normal life.  I just wanted to be alone with Jeremy and try to pull myself together.  Every hug hurt, not only emotionally but physically.  I couldn’t get a grasp as to why I deserved all of this.  I could not see the light at the end of the tunnel. 

  The morning after we got home from the hospital I was scrolling through Facebook and I came across a picture of a sunrise. A whole whirl wind of emotion came over me and I sat and cried (just as I am crying while typing this).  I finally felt like my life wasn’t over.  My life may have been shattered for the last few weeks but it wasn’t over.  Other people have been through this, they made it through and so would I. The sunrise made me feel like I was alive again and every day was going to be hard but the sun would rise again. I realized I have never given thanks to the fact that the sunrises each day.  We have so much in our lives that each and every one of us takes for granted every day.  We are all guilty of always wanting more and as people don’t sit back and realize how much we already have.  We always want a bigger house, more money, a better job, a new car, more kids, to be married and are always comparing ourselves to everyone else.  I don’t feel like I am that person who always needs something better but I know we all get that way from time to time.  For the first time in my life I felt like I won the lottery.  I have the perfect house, the perfect car, the perfect job, the perfect amount of money and the perfect family.  I’m more thankful for the things I do have more than ever. It makes me sad to think my life had to be shattered to realize this. Don’t get me wrong, I have always been a thankful person but my thankfulness was just taken to a whole new level. Every time I see a sunrise I am sure it will continue to make me cry but also make me feel thankful.  God is good!

  We have so many tough days ahead of us and there will be no end to the pain from losing a child.  The memories from what I call “the 2 weeks of mental torture” and “the brutal delivery” will continue to haunt me.  I know that with time some of these horrific emotions and memories will fade but we are going to be forever changed. I will think of our sweet Violet every day.  We know that she is in a great place and watching over her mom, dad and 3 brothers.  She is forever our angel. 

Thanks for all the love and support

Love you all,


Heather & Jeremy 

Monday, October 5, 2015

The Diagnosis

The Diagnosis

Do you know that feeling when it hurts so much to know something but it gives you so much anxiety not to know? That’s how I felt when it came to finding out the diagnosis of our baby.  My mind has been racing every which way but the thought of knowing made me sick.

 We were just heading out for my weekly routine check when my phone rang.  When I saw the number, my heart sank.  It was my genetic counselor calling to give me the results of my lab work.  I listened to him tell me my baby has Turner Syndrome.  I had a sigh of relief but yet I wanted to cry.  I then thought to myself, “Wait, only girls can get Turner’s!” He just told me I was having a girl.  I actually had a moment of excitement.  It didn’t matter the sex but at least I knew that result would not be a disappointment or bring me sadness. 

Turner Syndrome (TS) is a genetic condition that affects females only. It occurs when one of the two X chromosomes (one of the two sex chromosomes), normally found in females, is incomplete or missing. While some babies can live a normal life, many develop other conditions like Hydrops and Cystic Hygroma and their lives end in spontaneous abortion or stillbirth.  Research says 1in 2000 to 1 in 5000 babies have TS.  We just happen to be that 1 and I wish I could say I would be the last but we know that can’t be the case.  They did say the silver lining of finding out that the baby has TS is that this is one of the chromosome abnormalities that would least likely happen to us again. 

I will continue to go into the doctor on a weekly basis for fetal heart tones and checks to make sure I am not developing preeclampsia until baby passes.  We were in earlier in the week last week and the heart tones were still in the 140 range (which has been the case for the whole pregnancy). Unfortunately by mid-week the heart tones had dropped significantly to the 70’s. I am still feeling lots of movements which is the hardest part for me.  It’s a mental battle.  I am trying to enjoy and embrace every movement I feel but knowing the end result just makes it that much harder.  My belly continues to grow rapidly as I am 24 weeks this week.  It is very hard to get dressed in the morning and see myself and not be sad of what the future holds for us.  I keep telling myself every day that God has some plan for us.  We don’t know what His plan is at this point and it seems unfair but hopefully someday we can see through His plan.  The best way I can explain how I feel right now is that I am a hospice nurse, only my patient is inside of me.  I feel that I have to take care of my baby (my patient) and give it as much comfort as possible until she passes, just how hospice nurses care for their patients. This may seem weird but it helps me get through this.  

Please continue to pray for us, each prayer makes a difference.  We still have so many decisions to make and we know the sadness that is in our future.
Thanks for all the love and support!
Love you all

Heather & Jeremy